Diagnosed with neurofibromatosis at just five years old, Adam began developing tumors across his face. As his appearance changed, the way people treated him changed too — often harshly and cruelly. But instead of letting ignorance and bullying define his future, Adam chose strength over bitterness.
Today, he is known and respected worldwide. He has starred in films, appeared on major television programs, and dedicates his life to challenging discrimination against those with visible differences. His path has been difficult, but deeply inspiring.
We often stress over small daily annoyances — a slow commute, a disappointing meal, trivial frustrations. Yet stories like Adam’s remind us to be grateful, to find courage in adversity, and to recognize that a meaningful life isn’t built on perfection.
Adam’s condition began after a childhood accident — a bump on the head that never disappeared. Doctors soon diagnosed him with a genetic disorder that causes benign tumors to form on nerve tissue. His twin brother, Neil, also has the condition, though in a much milder form.
School was painful. Adam faced constant bullying, taunts, and cruel nicknames. Many children would have been broken by that — but Adam made himself a promise: he would never let someone else’s ignorance determine his worth.
Over the years, he has undergone dozens of surgeries. Yet he remains a powerful voice against the idea that appearance dictates value, insisting that society must broaden its understanding of beauty and representation.
His breakthrough came when he was cast alongside Scarlett Johansson in Under the Skin, a role that brought global attention to the importance of authentic disability representation. Since then, Adam has used his voice and visibility to advocate for others. He has delivered TED talks, appeared on Celebrity MasterChef, worked in broadcasting, and been named among Britain’s most influential disabled figures.
Optimistic, confident, and fiercely proud of who he is, Adam says that if he ever becomes a parent, his children — with or without the same condition — will grow up knowing they are loved, supported, and, in his words, “genetically awesome.”
